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Registry structure

The data is entered and maintained in a central database with internet access. Each EBMT centre is represented in this database and users from a centre can enter, view, modify, obtain reports and download their own data once the necessary permissions have been granted by the principal investigator of the centre. In addition, all EBMT member centres can obtain general overviews of the complete EBMT data. The database is run and accessed through a system called ProMISe (Project Manager Internet Server).

National registries operating in some countries are integrated in the EBMT data flow by mutual consent and use the same central database. A small number of national registries enter data for their centres if preferred.

The EBMT Registry Office in London is in charge of checking the MED-A subset of data, feeding back information to the centres on the quality of their submissions and requesting follow up information. National Registries also perform similar checks.

The data collected is reflected in the Med-AB forms. Centres can submit data by requesting data entry access to ProMISe and doing their own data entry (unless it is entered by their National Registry). 

Follow the links for further information on how to submit data and apply for ProMISe access and details on integrated national registries.



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