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Registry structure

The data is entered and maintained in a central database with internet access. Each EBMT centre is represented in this database and users from a centre can view, modify, obtain reports and download their own data once the necessary permissions have been granted by the principal investigator of the centre. In addition, all EBMT member centres can obtain general overviews of the complete EBMT data. The database is run and accessed through a system called ProMISe (Project Manager Internet Server).

National registries operating in some countries are integrated in the EBMT data flow by mutual consent and use the same central database. Most of these national registries enter data for those centres in their country which do not wish to access the central database directly.

For countries without national registries, the EBMT Registry Office in London fulfils the same mission. In addition, this office is also in charge of checking the MED-A subset of data, feeding back information to the centres on the quality of their submissions and requesting follow up information.

The data collected is reflected in the Med-AB forms and centres can submit it in two ways, either by requesting data entry access for ProMISe and doing their own data entry, or by filling in the forms and sending them to the EBMT Registry Office or to their own national registry.

Follow the links for further information on how to submit data and apply for ProMISe access and details on integrated national registries.

 
 

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